Moonface

Appointment at Sacred Heart yesterday with Prof Chye. He spent a lot of time with us, organised treatments/pills plus sorted out posible respite care in a great little place in The Wolper if and when we need it plus back up at home too. So very happy with that – also had blood test in case I need more red cells.

We altered medications to reduce Dexmethsone to 2mg per day as side effects are beginning to appear – including leg strength and puffiness – which explains the moonface!

I am now on the following:
Targin for back pain (10mg 2x daily)
Dexmethasone (2mg 1 x daily) for appetite and nausea
Nexium (20mg 1 x daily) acid reductioon
Pramin (3 x 100mg daily) for appetite and nausea
Allopurinol (1 x daily) a gout edication that cleans up left over debris following chemo
then Mirtazepine (1 x 15g in the evening) as a side effect it boosts appetite and also helps sleep and is an antidepressant to boot so it seems a great choice.

Managed to drive around – dropped Laurel at Jenny Hope our friend in Paddington for lunch and went and got my drivers licence renewed – so feel like I achieved a lot. Almost normal!

Finally we used an Amazon gift card given to us by my brother Tom!! We are now proud owners of the Nutribullet juicing thingy – it’s awesome… looking forward to healthy drinks all round!

On a side note had a great night's sleep –perhaps the Mirtazepine or just being up and around.


On the DC treatment:

I have no regrets regarding the decision and am glad and hopeful I have been a part of developing this immunotherapy.

Below are a few blogs for others on the journey.

Great news for Kate MacRae who had a clear scan. You can read her story here – Date for Kate

Peter Trayhurn's blog is in depth  – he's over in Germany now and also caught up with Claire in Duderstadt.

My own Duderstadt DC treatments are linked here.