Back home

Back home in Sydney after a week of indecision whether to go via Duderstadt.

With increasing fatigue and pain I decided to jump on a flight from London. Strangely once on board pain subsided and I got plenty of rest – so much is in the mind I guess but didn't want to risk entering NHS care and getting permanently stuck in UK.

Will arrange for CT scan and opinion here and see where we are up to and travel back as soon as we know, if timing is right.

Thinking St Vincent's may be the best care, if available.

Flight was great and ate more in a day than in the last week or so – I think appetite and dehydration played a large part in energy – or lack of.

Sydney's colder than I expected so Lizzie and I lit a log fire in the living room – luxury!

Again if anyone would like to know more about the DC treatments it's linked here.

56 not out

Made it to 56! Yo. Spent today with family at Wapping fete day (and pub lunch) and an evening of comedy at the Spontaneous Combustion 25th anniversary bash.

After six months discovered the Fitness First up by St Katherine Docks – pool, sauna, steam room.  Doh! if I'd only known earlier. Tried some acupuncture and then physio to try and relieve lower back pain which has been keeping me awake – don't think it's disease related but the insomnia is so difficult to recover from.

But had first nights sleep in ages last night so that's a great birthday present! Back to Duderstadt for 6th treatment on the 7th July then home to Sydney! Will ask Dr Nessulhut about the IV GCMaf injections.

Called for a GP appointment but earliest is a week away – and they want to close the local surgerey down. How is the NHS considered best in the world?

Jack's off to Paris for a week with friends from Oz – it's been great him being over here – couldn't have managed the past few months without him!

Having sorted out most of our affairs in Australia and UK I'll rest up a bit and hopefully recover a little – with the recent tiredness and insomnia I've dropped the 3 kilos gained over the last six months which is a shame.

Will see if a CT scan back in Sydney shows any improvement following last two Anti PD1 and revised peptide treatments and decide then if I travel again for more.

Also looking to other hospitals in Sydney for treatment back home – not sure Prince of Wales oncology is the best choice following my earlier decisions – not because I'm concerned by their disapproval, just would prefer a team with a more open approach to alternative choices and a more holistic approach to treatments. Even if my DC treatment doesn't work conventional chemo combinations often fail too so I see no reason to dismiss the alternatives.

The obvious choices seem to be St Vincent's or Chris O'Brien's Lifehouse at the RPA So will see if I can get into one of those for local care.

Again if anyone would like to know more about the DC treatments it's linked here.

Where are we now

Staying with Jack in uber cool Potsdamer Platza, Berlin following fifth DC treatment in Duderstadt.

Dr Nessulhut again added the Anti PD1 and also the nf-P2X₇ has been altered on Julian Barden's recommendation so we hope to see results over the next three weeks.

OK so the first (iv) injection of nf-P2X7 was in the mouth as Dr Nessulhut said that in mouse studies the effect was remarkable in impacting lung metatasis. The second half of the DC cells are injected subcutaneously in the arm as usual.

He also discussed the use of IV GcMAF which has helped other patients to increase macrophages.

Feeling tired and appetite is lower but how much of that is stress and how much disease is hard to separate. Insomnia is a common symptom in cancer apparently.


Exciting news – Duderstadt held a classic car show in the main street this weekend. Check me out checking out the 1970 3.5 280SE convertible... here's a youtube on how to hot wire it!

So:

Another quick recap below for those looking for information on the treatments to save reading through older posts:

Diagnosed with stage 4 stomach/esophageal cancer in July 2013 and offered 'palliative' treatment in Australia – a round of radiation with chemo to shrink the tumour and stop the bleeding followed by three rounds of non-stop chemotherapy with Xeloda over 60 odd days – by the middle of the third course my hands and feet were extremely 'ouchy' and shedding skin and I had all the energy of a 55 year old bloke who'd been on 60 non-stop days of chemotherapy.

Thanks to the shared experience of Simon and Kate McRae and their discovery of Biosceptre's work and the brilliant Doctors Neßelhut I abandoned chemo and shuffled off to Duderstadt in Lower Saxony, Germany to embark on a course of immunotherapy with dendritic cells – particularly those primed to target a 'non-functioning' receptor 'nf-P2X₇' identified by Julian Barden at Biosceptre.

Put simply, all cells carry the P2X₇ receptor which tell the cell when and how to 'die' when its time is up. Cancer cells however have a non-functioning version of this receptor. Bioscepter have identified this and created a treatment which allows cells to reactivate the receptor and cause cancer cell death. Brilliant! and it appears this may well be a generic cancer treatment rather than being specific to a cancer type – to date Biosceptre have identified the marker on more than 20 cancer types. Even more brilliant!

The  treatment has also added Anti PD1 - a seemingly effective treatment to help attack the main tumour.

Additionally, Dr Neßelhut and his wonderful team use a combination of approaches to help control and eradicate the cancer cells. These include localised hyperthermia (Oncotherm – also now available in Sydney) combined with Newcastle Disease Virus (NDV) (also not yet available in Sydney) our normal cells can pretty well shrug off NDV but cancer cells are weakened or killed by the virus.

They also add Ozone and Zometa treatments all of which have little if any side effects. To date I have had a slight cold which may be from the NDV or may well just have been be a slight cold.

Other prescribed medications are:
Metformin 1000mg x 2 times per day
Cimetidin 400mg 2 x per day
Q-10 x 2 cap 
Vitamin D3 x 5 drops
Coriolus Mushroom x 2 capsues twice per day

If anyone wants any other information feel free to get in touch.