Patience

Five weeks on and still waiting on NHS CT scan results. After third GP appointment it has at least been requested to be faxed through so hopefully only a day or two more. The GPs have done everything they can but the hospital system here seems disconnected.

Dr Nessulhut has booked next treatment dates for 2nd and 3rd June but needs the results. Jack and I will spend some time in Berlin after as a treat!

Also Julian Barden at Biosceptre has suggested a slight change to the structure of the treatment – 'peptide-only priming – not just the conjugated peptide'. I don't pretend to remotely understand that but am sure Dr Nessulhut does!

Good news too from Kate MacRae who is back in Duderstadt for a top up treatment and is still all clear.

I'm noticeably more tired and swallowing symptoms remain but appetite and weight are constant – just need to see the scan report to understand whether metastasis have developed over the the past 3-4 months.

Meantime I'm waiting for the UK sun (summer's on a Wednesday this year apparently!)