My legs are pretty weak – not good for getting up after my unsteady comedy slip into the bushes in front garden but ok for walking.
Not much to report but Chye is going to prescribe Megace for appetite to replace Dexamethsone. They are currently trialing Megace v Dex at Scared Heart but I'll not be on the trial so at least I know its not a placebo.
Still tired but enjoyed a few sunrays in the garden yesterday.
____________
On my past Duderstadt Dendritic Cell treatment for those interested:
Not sure how much it has benefited me or how much of the four or five months of strength was due to coming off chemo but I have no regrets regarding the decision and am glad and hopeful we may have been a small part of developing this immunotherapy.
Interesting note From Claire's blog 'As Prof proudly said to Claire, "You are officially my longest surviving non chemo patient"'
Below are a few blogs for others on the journey.
Great news for Kate MacRae who had a clear scan. You can read her story here – Date for Kate
Peter Trayhurn's blog is in depth – he's over in Germany now and also caught up with Claire in Duderstadt.
My own Duderstadt DC treatments are linked here.
No comments:
Post a Comment