Extremely dehydrated and struggling with energy. Believe chemo diarrhea to blame so called district nurse who agreed i needed rehydration.
Called ambulance and spent night in ER at St Vincents – plenty of bags of liquid and drinking water.
Moved to freezing cold room next day, listening to people 'ahead' of you in disease is a little disturbing with families being told of their imminent demise – next time I must remember to use the BUPA card!
Still no real appetite. Weight at 54kg but that allows for extra liquid.
Stopped chemo for now and have appointment to discuss next steps on Monday.
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On my past Duderstadt Dendritic Cell treatment for those interested:
Not sure how much it has benefited me or how much of the four or five months of strength was due to coming off chemo but I have no regrets regarding the decision and am glad and hopeful we may have been a small part of developing this immunotherapy.
Interesting note From Claire's blog 'As Prof proudly said to Claire, "You are officially my longest surviving non chemo patient"'
Below are a few blogs for others on the journey.
Great news for Kate MacRae who had a clear scan. You can read her story here – Date for Kate
Peter Trayhurn's blog is in depth – he's over in Germany now and also caught up with Claire in Duderstadt.
My own Duderstadt DC treatments are linked here.
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