After six months discovered the Fitness First up by St Katherine Docks – pool, sauna, steam room. Doh! if I'd only known earlier. Tried some acupuncture and then physio to try and relieve lower back pain which has been keeping me awake – don't think it's disease related but the insomnia is so difficult to recover from.
But had first nights sleep in ages last night so that's a great birthday present! Back to Duderstadt for 6th treatment on the 7th July then home to Sydney! Will ask Dr Nessulhut about the IV GCMaf injections.
Called for a GP appointment but earliest is a week away – and they want to close the local surgerey down. How is the NHS considered best in the world?
Jack's off to Paris for a week with friends from Oz – it's been great him being over here – couldn't have managed the past few months without him!
Having sorted out most of our affairs in Australia and UK I'll rest up a bit and hopefully recover a little – with the recent tiredness and insomnia I've dropped the 3 kilos gained over the last six months which is a shame.
Will see if a CT scan back in Sydney shows any improvement following last two Anti PD1 and revised peptide treatments and decide then if I travel again for more.
Also looking to other hospitals in Sydney for treatment back home – not sure Prince of Wales oncology is the best choice following my earlier decisions – not because I'm concerned by their disapproval, just would prefer a team with a more open approach to alternative choices and a more holistic approach to treatments. Even if my DC treatment doesn't work conventional chemo combinations often fail too so I see no reason to dismiss the alternatives.
The obvious choices seem to be St Vincent's or Chris O'Brien's Lifehouse at the RPA So will see if I can get into one of those for local care.
Again if anyone would like to know more about the DC treatments it's linked here.
Happy birthday Adam
ReplyDeleteYou deserved a good night's sleep as a present. I have just arrived home in Oz and spoke to Laurel this morning so i think the alternative treatment centres you are considering when you get home are a good idea. Good to hear also that you have sold the flat and tied up other loose ends. Pity about the NHS failing you though.
Best wished for a safe trip home in July
Russell
Adam
ReplyDeleteHappy birthday from the Wrights.
We have been following your progress closely on the blogs.
Wonderful news that you will be back in Sydney soon.
We would love to catch up with you.
You are most welcome to come over to our new place in South Coogee whenever you can.
Touch base when you get back.
All the best
Steve, Angela, Emily and Oliver
Hi Adam, Hope you feel as good as you look in the photos! Look forward to seeing you when you're back in Australia. We're in Sydney in early August for a couple of days, hope to see you then. Best wishes, Annxxx
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