Monday, 13 October 2014

Hi everyone, for those who can't make the service on Wednesday the details for streaming are as follows
Ceremony:
Adam Ray
Ceremony Date:
15/10/2014 2:30:00 PM AEST
Ceremony Passcode:
183323A
To view the service visit http://video.esmp.net.au
Video streaming becomes active 5 minutes before the start time above, and for 60 minutes after the start time. Attendees must log in during this period to connect to the service

Sunday, 12 October 2014

The End



To all friends of Adam Ray:
Adam died at around 7.15 am yesterday, Sunday 12th, peacefully in hospital. He exhausted all medical options on September 26th and opted for hospice care from then on. A funeral will be held at 2.30 AEST on Wednesday 15th at the South Chapel, Eastern Suburbs Memorial Park, 12 Military Road, Matraville. For those unable to attend there will be a live webcast of the service, the link for which I will publish here as soon as I get it.
Laurel McGowan

Wednesday, 1 October 2014

Wow Wolper



Wow Wolper hospital is superb.
Facilities and staff like a small hotel.
Able to sit outside and share spaces and family allowed access all areas
Jack's working on songs and Laurel's here as a pillar as ever.
Friendly staff can't do enough even offering G&Ts!
Will try and recover strength a little and aim for a plunge in the pool
It's not the zum lowen but not far off!
Will post as days go by...

Sunday, 28 September 2014

Moving on

A perfect Sydney day 28 degrees
Enjoying warmth and possibility of moving to Wolper on Wed to spend some BUPA dollars!
Had shower today and walked assisted to toilet
All small stuff but a deal to me
Laurel and family support immeasurable
Love to all here and in UK

Thursday, 25 September 2014

Hooray for Pete

http://petertrayhurn.blogspot.com.au/

Peter Trayhurn has manged to become all clear which is a remarkable achievement.

I'm still in St Vincents being cared for by Laurel and family. Laurel bought in photo albums – oh how time slips away – Family so important and I dearly love those precious moments we have had.

Had a PICC line put in today – simple and very little pain and will save more needles!

Blood red cell count low so 1 bag of blood overnight then an endoscope tomorrow with probable stent. I've argued it won't boost appetite but hopefully it can't hurt!

Peg tube is ruled out.

I look like I could do with a wash and brush up!

Tuesday, 23 September 2014

Banjo boy

Thanks to Laurel's unending patience spending hours in uncomfortable chairs and multiple visiting 'team' members we seem a little closer to resolving feeding tube. Finally GI surgery team are involved and it seems a peg tube is the go.

Still very weak from lack of eating but bowels seem to have cleared somewhat.

Jack's got together with some other hip musos and formed an early jazzy dixie group - he bought a banjo so that should be fun!

Lizzie mid HSC so all go....

Reflux is main issue but seems ok tonight - hope that doesn't jinx it!

All a long way from Duderstadt but hopefully on the right  track.






Friday, 19 September 2014

Nasal update

The nasal feeding is unbearable with vomiting on each movement so I asked Prof Epstein to look into it.

They were talking of looking at adjusting position at xray but honestly it's been a day and no benefit so I mentioned to Rob the nurse here that I was going to ask for it to be removed.

In seconds he'd pulled it out and I'm a free man! Awesome! We'll both probably get into trouble but hey it's my choice.

Waiting next then on Jejunostomy.